I’ve started a page on facebook specifically for women who were diagnosed with Inflammatory Breast Cancer while pregnant or nursing and who were either misdiagnosed, put off treatment, thought they had a plugged duct or mastitis. I’m doing this so I can connect with other women who went through this experience and hopefully in the very near future I want to start an informational web site for women who have mastitis that won’t go away…and need to know the possibilty is there. I had never heard of IBC. I don’t want to “freak out” breast feeding moms but at the same time I know IBC is very fast spreading and information and treatment early is key to survival. So if you know of someone who was diagnosed with IBC when they were pregnant or nursing, please let them know about this facebook page.
I Was Diagnosed With IBC When Pregnant/Nursing, on Facebook