Meet Ned


I need to admit something.  There’s someone else in my life besides Jeremy.  His name is NED.  I met NED right around the time they removed my breasts.  In fact, it was my surgeon who introduced me to NED.  She was ecstatic, she thought we’d be a hit from the very start.  And she was right, I liked him.  He was handsome and clean.  I like clean.  At first I felt really relieved to meet NED.  I had this image in my mind of what NED would be like, perfect actually…. absolutely perfect.  I figured NED and I could go on living together and we’d be one big happy family.  I figured Jeremy would get used to this other person in my life.  I like NED and I figured he would too.

But after a while I realized that just like Jeremy, NED comes with his own issues.  I mean….you know, he looks clean, he wasn’t fat or anything like that, he fit “within the margins” of what a good-looking person should look like, but then he got kind of high maintenance on us.  For example, we’d just be going along alright, everyone getting along and he’d make a really big issue out of nothing.  He’d insist it was a problem and we’d have to stop everything and focus on NED.  Like he was the only one in our family.  Jeremy would take it in stride, but I’d get worked up.  Sure, I’d try to look cool and collected, but NED really was making me mad and sad all at the same time.  He can be very selfish sometimes.

Then sometimes NED would be so great we’d just forget about him.  We’d forget even that he was a part of the family.  We’d get going in the busyness of life and forget how great NED actually was and how much we liked having him around.  Sometimes we would get irritated with each other or we’d just plain ignore NED and yell at each other.  We really wanted NED to be a reminder of how much people matter, family matters, but sometimes he’d be so quiet we’d just plain forget.

NED was always great about accompanying me to all my doctor appointments.  Even after my plastic surgery and my little nip/tucks, he would remind me he was still here.  The doctor would come out of surgery and say something nice about NED like “so glad to see NED in surgery.”  This always made me happy. 

Sometimes I would get scared I lost NED, if he left for a little while I got nervous, but he never really actually left me.  After my scans or procedures, or little cancer scares, handsome NED would pop his head up over the scan machine and say “boo! you thought I was gone, didn’t you!”  And I’d laugh and give NED a hug.  Sometimes I’d even cry when I’d see NED.  It would make me so scared when I thought he was gone.

The kids are a little confused by NED, but they really don’t fully understand why he needs to be here.  Cancer was confusing to them too.  It’s better this way I think.  I don’t really want them to fully understand just yet.  Sometimes they ask me questions like “Why do you have to have cancer mommy?”  I remind them I don’t have cancer because NED came to live with us instead.  It usually resolves their curiosity until the next time they see me getting in the shower or changing my clothes and I have to remind them again why NED is here.

The truth is, Jeremy and I are best friends.  We’re inseparable.  When I want to share something cool that happened to me during the day, I think of Jeremy.  When I want someone to comfort me when I’m sad, I want Jeremy.  But I’m quite fond of NED.  I think NED is an important part of my life.  He’s not always easy to live with, but I’d prefer his moody nature, than to live without him.

So after two years with NED, we’ve decided he can stay, and we really hope and pray he decides to stick around too.

Here I am before we ever imagined NED coming in to our lives. I think if you would have told me about NED then I would have laughed at you!

 

Here I am right before NED moved in. If you really want to know how I know this....a. the saggy normal breasts. b. I would not be wearing this shirt post-mastectomy and c. the bald head stuble.

 

Here I am cuddling with Elijah. You can tell I enjoy having NED around. I think my face looks happier and healthier.

 

Here I am celebrating my new breasts with Jeremy and NED. Do I look happy or what? This is 5 days post-DIEP and yes, you do see a bit of cleavage!

Here I am leaning on NED. It's nice to feel somewhat normal again.

 

(NED is an abbreviation for No Evidence of Disease.  This is the term they give my cancer status.  I hope NED sticks around, how about you?)

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8 thoughts on “Meet Ned

  1. lisasmith says:

    I got this post through the mothers with cancer site… navigating a rare diagnosis with little info has been a bit challenging to say the least. Yesterday I got “good news” and I’m a mess emotionally, sick of the waiting game but glad I’m still around to play. This post brought me to tears. Thanks for sharing.

    PS you can read about my yesterday on my site. http://www.lisasmithblog.com

    so nice to meet you =)

    • clergygirl says:

      Thanks for passing on your site! I’ll look for u on Twitter. I thought I had heard of every kind of breast cancer….I’ll have to read more:)

      Sent from my iPhone

  2. Kaylee says:

    Wow – you wrote that so well. NED is a good friend of mine too – I’m glad we can share him.

  3. Kim Brown (MIL) says:

    My love for NED is indescribable! I am sooo happy he came to live with you.
    The peace he brings transcends far beyond the walls of your home.

  4. Kim Kopec says:

    Well written Jen! Intrigued me from the beginning and held me till the end. Motivated me to get your new website done!!!

  5. Becky says:

    Oh, Jen!! Really beautiful post….even though I knew who NED was when I saw the title, I didn’t expect all the emotions that your post would bring. Many tears, not sad ones, just tears of knowing who NED is and what it means to my life and other’s lives and I guess some sad ones too for those I know who would like to have NED, but don’t.

    P.S. I go back to NY for my revision May 16th.

  6. Kevin says:

    Beautiful prose. You have a real talent for writing! I guess we all hope to have a NED in our life.

  7. Nicole Wick says:

    Oh my goodness, I am so glad that you sent me to this post. What an amazing story. I’m honored to have you share it on my blog. And I’m glad that you have NED too. 🙂

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